This is why I try not to post in the mornings

I’m sitting here crying over dirty dishes.  Fucking dirty dishes in the sink.  My back hurts sooo much and I am so sick of being in pain all day… EVERY FUCKING DAY.  I’m can’t stop clenching my teeth as I type this 🙁   I try so hard to ignore it and just get on with it but sometimes it totally gets the better of me.  I hardly slept at all last night even with plenty of valium and other drugs on board.  I woke up so many times, my back hurting, burning sensations down my legs and my hands feeling like they were cramping.  I’ve had enough of all this shit. 

I. have. just. had. enough.

I haven’t been cooking much because it increases my pain to stand still at the kitchen bench and chop food or stir pots.  I literally can’t stand still for 5 minutes without ending up holding my breath and clenching my teeth against the pain – which is exactly what happens when I end up in a queue out shopping or at the bank or something.  I can’t lean over the sink to do the dishes and they pile up and pile up…. and I HATE waking up in the morning and having to prepare breakfast or fix the Small Child’s lunch in the middle of dirty kitchen.  I am getting so tired of having to rely on other people for every stupid little thing. 

I can’t vacuum the carpets.
I can’t mop the tiled floors. 
I can’t clean down the kitchen cupboards.
I can’t weed the damn garden.
I can’t wash the shower or bathtub.
I can’t hang the washing out on the clothesline.
I can’t dust things anything above my head height.
I can’t get up and change a fucking lightbulb.
I can’t push a trolley at the supermarket.
I can’t reach up and put away or pull out things from high shelves.
I can’t carry the damn groceries into the house.
I can’t pick up anything heavy… like a small dog or the Small Child.
I can’t … finish this list it goes on ad infinitum.

Clean the gutters?  Prune trees?  Wash the car? Mow the lawn?  Wash windows?  You’ve got to be kidding right?  My Mum who is in her late 50s can do all this stuff and I can’t.  It shits me to tears that I need to have other people do these things for me… things I would much rather do myself.  Hell I haven’t even felt up to holding my arms up long enough to wash my hair for the last three days… and I find it difficult to bend down in the shower to pumice my little feet for crying out loud.  Shave my legs?  Oh surely you jest.  😐

It’s no wonder I feel so damn cranky and depressed all the time which today is spilling over into not wanting to deal with ‘other people’.  I really feel like I just don’t want to be near anyone or have to talk to anyone or participate in anything that even remotely resembles social intercourse.   Chatting on MSN…. that’s about the best I think I can manage to do… it’s so much easier to lie and say ‘Good thanks and you?’ via MSN than it is to someone’s face or over the phone. 

So I guess it’s a good thing that I don’t have anywhere I need to be right now.
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The litmus bed.

I have to make my bed everyday…. and I mean I literally HAVE to do it.  I simply can not leave the bed unmade.  I detest seeing the bed unmade and I can’t get into an unmade bed in the evening without making it first (even if I’m staying in a hotel or something).  I don’t know what it is but I am compelled to do it.  I feel indescribably uncomfortable if my bed is unmade… it’s not dissimilar to the feeling I used to get if I went to work without any make up on.  It’s that feeling of something being not quite being right or not quite decent or proper…. a very unsettled feeling that remains with you.

If I’m down with the flu or home sick for some reason – I will make my bed and go rest on the lounge instead.   I’ve had maybe a dozen rather invasive IVF surgeries which frequently caused severe abdominal discomfort that naturally required several days of convalescence… on these post operative occasions I would get up and very slowly and painfully (it might take me 20mins) make my bed and would then go couch for the day.   Even when the Small Child was an infant keeping us up all night, I would have to make the bed first thing and could not manage to nap when he did during the day.  After the last car accident I spent several weeks feeling like I could hardly move yet – I still HAD to make my bed and would set up camp in the living room instead.

I can’t sleep in … EVER (well not without heavily over-medicating myself) and when I wake up I am usually so pained from laying down still for several hours (if I’m lucky) that I have to get up as soon as consciousness returns.  It’s the pain that drives me out of bed as soon as I wake, so there’s never been laying around in bed on the weekends to read the newspapers or having a lazy morning.  I very very rarely go back to bed during the day to lay down regardless how crap my back feels or how tired I am…. though God knows I’d probably benefit from it.  Sigh… it’s just not in my make up to do so. 

Anyway, I’ve noticed since my last car accident that making the bed has turned into a very obvious indicator of how crap my back is on any given day.  If I get up and am able to make the bed before going off for a cuppa and a heatpack then I’m probably not feeling too pained yet and might have a chance of having a relatively ‘good back day’.  If I get up, go for heatpack and tea BEFORE being able to face the bedmaking… then I’m probably not quite doing so well.  If the bed is still unmade by 10am or so it’s because my back is causing me too much pain to get in and do it.  And I can feel the bed lurking in my room taunting me because I don’t have the requisite freedom of movement or the required energy to feel up to making it. 

If, come 3pm, my bed is still not made… you can normally tell by the look on my face that the back pain has totally gotten the better of me that day.  Recently I noticed the week after going to the Cirque du Soleil I probably averaged only managing to make my bed by mid-afternoon every day for the entire week I was so stirred up.   🙁

Maybe it could be useful as a quantifable measure of what my pain levels are like for the day.  Maybe I should be writing down what time I made the bed as a record of how much the back pain is bothering me each day.   Or maybe… and this is a totally preposterous suggestion… maybe I should get over it and forget about making the damn bed altogether!
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Totally self indulgent, long winded post – I’d skip it if I were you.

I’ve started trying to write this paragraph four times now (this is the fifth attempt) and each time I have deleted the sentence to have another go at trying to get my thoughts out.  Today it’s been two years since my Dad passed away and I’ve been feeling really unsettled for the last couple of weeks realizing that so much time has passed already.  Last year, I was still feeling very melancholy and was trying hard to remember my Dad the way he was before MND (Lou Gehrig’s disease) but this year, I’ve been quite wrapped up in what changes the last two years have bought to my life.

Being of a conservative generation and possessing a calm, steady and even temperament – my Dad wasn’t an overly demonstrative man so whenever he talked to us on personal or emotional topics it always carried significant weight and usually left an indelible impression on his daughters.  Before my Dad’s illness had deteriorated to the point where he lost his ability to talk, he sat me down and told me that he was very worried for me with all the IVF treatments we had been going through (Yes – my Dad was the one in the room with an insidious terminal disease and he was concerned for MY wellbeing) and told me how much it pained him to see us going through the continual round of surgeries and hormone treatments, the increasing financial burden and the emotional devastation of repeated failures.  At the time I didn’t know how to respond except to try and reassure him that it wasn’t that bad and that we were holding up okay.

A couple of months after that I had another discussion with my father about IVF and I told him that we were giving it away as we had decided we’d done all we could… and I lied to him and told him I have the Small Child and Mr K and that our little family was all that I wanted it to be.  He seemed visibly relieved to hear that I’d given up trying to have a second child… but the truth of the matter was that Mr K and I had decided to put it on hold until after my Dad’s inevitable death.  The physical and emtional stress of IVF, the grief of a recent miscarriage and three years of pain watching my mother struggle and my father slowly die certainly took its toll.

Dad passed away quietly in his sleep early on a Sunday morning 21 January 2007.  My Mum called me at 5am to tell me he was gone.  Unfortunately, I had been at a party until 2am and was still legally way over the limit so I had to wake Mr K and the Small Child so Mr K could drive me to my parents home.  When I got there my mother was in tears, my older sister BigSal was likewise messy and my younger sister was in her car driving up from Bryon Bay.  I was feeling overtired, overwrought, still judgement impaired from the wine the night before and somehow – totally numb.  By the time my younger sister arrived she, my Mum and BigSal had all been crying for hours…. while I had been phoning the extended family, the funeral directors.  It wasn’t until I called Edouardo at nearly midday that I felt myself become tearful.  This was in no small measure attributable to the distance that had sprung up between us (his wife hates us) and his obvious sorrow at not being around during my Dad’s last years.  It was an emotionally draining day – one which I wish I had faced without the haze of sleep deprivation and a hangover.

The next day, Monday was the day I was scheduled to start my first full time job in many years.  Strangely enough the position was with Goliath, the very same organization my father had worked at for 37 years.  I mulled over and over whether I should show up or not amidst all the emotional turmoil… when I did finally decide to turn up for work on that Monday morning, it was largely due to my Dad’s pragmatic outlook – he was never one to sit around feeling sorry for himself and he wouldn’t applaud me for doing so.  I knew I could sit around with the family watching them continue to cry or I could go do something useful… in this regard I am just like my Dad.

I remember that first day feeling really rather shell shocked and wondering if our friends and family world would think me a heartless baggage for showing up at work the day after my father died.  I vividly remember thinking ‘What the fuck am I doing here?’ while we filled out a pile of paperwork.  I remember having to tell the Induction trainers that I was going to need time off in that first week to meet with the funeral directors on Tuesday and the whole day off to attend my father’s funeral on the Thursday.  I remember the way they looked at me like I had suddenly sprouted a second head or something and said ‘should you even be here?’  I remember assuring them that I was fine so long as I didn’t have to talk about it…. to this day I’ve wondered why I never had the nervous breakdown I feel I so rightly deserved back then.

I remember spending my evenings that week feeling overwhelmed at what I’d gotten myself into with that job (I was hired to be a Wireless Broadband Consultant… me!  With zero IT experience!)  I also spent my evenings that week putting together a slide show of photos of my father that I had been collecting since his diagnosis.  I felt the need to remind everyone that Dad was not always sick and immobile and stuck in that fucking wheelchair.  I wanted to remind everyone that Dad climbed mountains, went white water rafting, fixed cars, loved camping, laid bricks, cooked a mean BBQ, liked a beer and a laugh.  I wanted everyone to remember him as he was…. not the shell of himself he had become from MND.  It was really important to me to try and overshadow the sad memories of his last years by reminding everyone what he was like before.

Travel around australian three speed no handbrake long range

I put that slideshow to music and burned it to a disc that we could take to the chapel for his memorial.  The music was The Verve’s ‘Bittersweet Symphony’ as this song reminded me of my Dad going skydiving when he could barely still walk.  It reminded me of how he hung in there doing as much as he could while he still could.  On Wedesday before the funeral I shared it with my Mum and my sisters and my sister BigSal didn’t like the song.  I said it was done and I didn’t have the energy or the motivation to redo it.  She then did something that I don’t think I’ve fully forgiven her for… she complained to our mother who then came to try and convince me to change the song.  I still can’t believe she dragged my Mum into such a petty thing on the day she was burying her husband.  It is beyond belief.  In hindsight it may have been her way of trying to control things, something, anything during a time when everything felt out of control… I don’t know.  I do know that instead of spending the morning of my father’s funeral with my family at my parent’s home I was stuck at my PC redoing the video because my sister wasn’t coping.  Instead she wanted it set to Bert Kaempfert as it was one of my Dad’s favourites but it’s was so 70s lounge music uptempo and all solemnity was suddenly lost.  So I redid it a third time to Jeff Buckleuy’s ‘Hallelujiah’.  As you can imagine it was heartwrenching and left now a dry eye in the place, not even Fr Ray managed to hold back the tears – Fr Ray who has had the misfortune to preside over the funerals of many of his friends over the years.

Through some damn miracle, though I know not how, I managed to get through that week, and the following weeks of training at Goliath.  I was working ostensibly to help pay down some of our IVF debts.  I was supposed to be working to give us a boost in the lifestyle department (we hadn’t had a family holiday for years) and I was supposed to be going back to IVF and my ten little embryos that I have in storage in 2008…. that was until a stupid woman in a fancy RX8 failed to stop and rudely ripped the rug out from right under my feet sending me headlong back into a world of unending pain, stupor inducing drugs, restlessness, hopelessness and (I admit it) depression.

So with my father gone now two years am I thiking about him?  Or am I wrapped up in my own petty problems?  I know he’s been more on my mind over the last few weeks… mostly the little things over the holidays .  I’ve been thinking about my Mum a great deal and wondering how she was feeling whilst being reluctant to broach the subject when I spoke with her earlier.  But today mostly I’ve been thinking about how the last two years feel like they’ve been wasted.  I haven’t been able to work since the fucking moron with the RX8 damn near killed us. I haven’t been back to IVF as we had planned and I don’t honestly think my body could with a pregnancy, nor do I think a baby could survive my ridiculous pharmacological regime.

Right about now, I really wish my Dad was around to figuratively slap me upside the head with some sound advice or a wet haddock… which ever was nearest to hand.  😐
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This is the song that never ends.

Get woken by Small Child this morning at the very civilized hour of 0650.  Consciousness is a little slow to return as I do a ‘bit of a body check’ through the drug induced haze that I experience on a daily basis.  I realize I am laying in the EXACT same position that I went to sleep in and the covers are hardly disturbed at all.

I turn my head to look at the clock, turn my head the other way to blearily turn off the alarm I had set on my phone.  I tenderly climb out of bed… so far so good.  Yesterday’s painfully spasming neck seems to be subsiding a bit… it’a still there but nowhere near as acute.  I think to myself  "Self, you might be in the clear and just have the usual old deep aching neck and back pains today"’.  I get out of bed gingerly as per usual, go to the bathroom, splash some cold water on my face (as is my habit to help wake up from the drugs). 

I then wandered out to the living room, asked the Small Child to go get dressed out of his pyjamas and to then come and have some breakfast with me.  I put the kettle on, placed my heatpack in the microwave, grabbed some bowls…

And it was at this point that I made a mistake of monumental proportions.  Something so asinine and obviously unachievable I simply don’t know why I did it.  I mean honestly… who in their right mind would think they could reach into the pantry and fetch some muesli without anticipating the dire consequences of their actions?   For as soon as I lifted that muesli container (which must weigh all of 700gms tops) I experienced a massive sharp pain int he right side of my back at the base of my ribs.

I put it down quickly and stood there holding my breath waiting for the spasm to pass, and haven’t been able to do a thing since without causing more extemely painful spasms to reocur.  Couldn’t pick up the now boilded kettle without more massive painful spasm… couldnt lift the bottle of milk out of the fridge…  couldn’t grab the heat pack out of the microwave. either.  So I’m standing in the kitchen holding back the tears asking the Small Child to do these little things for me whiloe I whimper back to the living room and  imediately fasten myself to the heatpack hoping it might calm down a bit   🙁

So I’m sorry for whinging so much yesterday and if it’s not too much to ask – can I have yesterday’s neck pain back please?  All things being relative and all….

PS – Three days to recover from a social outing is really fucking ridiculous.
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